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“rare disorders”
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cord.ca
Canadian Organization for Rare Disorders
CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments
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eyeconditions.org.uk
Medical information: Contact a Family - for families with disabled children: information on rare syndromes and disorders
Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders
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crdnetwork.org
Philanthropy | Rare Diseases | Children Disease | Genetic Diseases | Children's Rare Disease Network
Children's Rare Disease Network is a non-profit organization that helps in curing rare diseases, children diseases, pediatric disease, genetic diseases and many more
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rarediseases.info.nih.gov
NIH Office of Rare Diseases Research (ORDR
The Office of Rare Diseases Research (ORDR) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORDR Web site provides information f
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hgfound.org
Human Growth Foundation - Helping Children & Adults with Disorders of Growth & Growth Hormone
helping adults and parents of children with disorders of growth and growth hormone through research, education, support, and advocacy